This month we are talking about multiple chemical sensitivities and how the Dynamic Neural Retraining System can help! We’ve addressed what MCS is, and the limitations it puts on those who suffer from this condition – but what about the people who love them? How do those who want to be near them navigate the severe limitations and living conditions which can accompany the confusing constellation of symptoms? The one universally shared symptom that we can all agree on is how alienating living with multiple chemical sensitivities is, especially in pre diagnosis stage when there is no official label for it and symptoms aren’t always logical or predictable. Most families, friends, partners and spouses often feel helpless overwhelmed and frustrated.
In the testimonials we hear many stories of having to rely on spouses and family members for not only strong emotional support – but the daily survival chores of shopping, doctor visits, transportation, advocacy and child care.
Mark Micelli, partner of Lisa, a client of DNRS kindly agreed to share some of his experience in living and loving a partner who suffers (suffered) from multiple chemical sensitivities.
“Living with someone who struggles with any kind of sickness or illness is a stressful situation, but these were the changes that needed to be made during those times. All of our normal day to day products we use thrown in the garbage, from laundry detergent, cleaning products, shampoos, soaps, deodorants and even clothes. Everything needed to be washed multiple times to get the smell out, I had to make sure to air out before I walked in the house because anything could trigger a reaction, everything we bought was free and clear and all unscented products, no chewing gum or mints. No air fresheners in the car, even going to the car wash was tricky, I had to make sure to get it done as early as possible and normally while at work just in case the soap from the car lingered. At one point we could only use her car when we went out. Thankfully I am self-employed because the time that I needed to take off to go to all the different doctors’ appointments and miss work would have had me on the unemployment line. Holidays and family gatherings were tough because I would have to go alone, and you start to feel as if you were single. I never wanted to talk about what was happening, it really felt like I was living a double life at times. I couldn’t come home from work and talk about a bad day or even just to vent to her. I had many conversations with myself out loud in the car on the rides home from work. Thank god they invented Bluetooth, I would pretend I was on the phone talking to someone when I was having full blown conversations with myself. I can remember going to my friend’s house in the fall, he had the fire pit lit and before I knew it I stunk of the burning wood, it was all over me, I drove home and got undressed in the car down to just my underwear and immediately took a shower, I thought to myself that was a close one, but it didn’t matter she could still smell the smoke in my hair – I started to think how is that possible? How could someone have that strong of a sense of smell? There were other occasions that I came into contact with scents that I forgot about throughout the day and hours later she would detect exactly what it was. The sense of smell was so heightened she could even smell breakfast sausage hours after I ate it, quite impressive. I also couldn’t bring certain foods into the house especially anything spicy like chilli or onions because she would react to them. This was the new norm and I never thought in a million years we would ever go back to the way things were. Then DNRS was introduced to us and things got better rather quickly – we were going outside recreationally, not just to go to doctor appointments. The heightened sense of smell calmed down a bit, but the progress plateaued until we went to Austin, TX to the live seminar. I was completely blown away by how fast things changed during that week. Lisa was down to 3 foods before the seminar and picked up a couple during that week. She now has well over 100 foods incorporated in her diet, she gained over 20 pounds from her lowest point, we go out to eat and drink all the time, I have sushi back in my life after a 2 year hiatus, we are traveling again and went to Mexico last month. I have no restrictions on what deodorants, shampoos, or soaps I can use, I have mouthwash back, yes things are back to normal. We are both so much happier now! I always enjoyed spending time with Lisa, but now we are having a great time going out and spending it together. We are living our lives to the fullest again and I am very happy that she found DNRS.
I absolutely recommend the DNRS program to anyone who wants to get their life back. Thank you Annie Hopper, Michelle Bubnis, Kelly Shotwater and the rest of the team at DNRS.”
We are so grateful for Marks thoughtful words and for sharing his journey with us and deeply respect the love, patience and monumental support he has for Lisa! We are also thrilled to report on Lisa’s continued health – be sure to catch next week’s blog where we talk to Lisa and see her full story!
We want to also recognise the very real situation of MCS sufferers without support, those who are navigating their conditions alone. Single people with multiple chemical sensitivity (MCS) face unique financial and social challenges when compared to their counterparts with other family members. From financial (when a single person can no longer work, there is no other recourse for income from other family members to help cover basic necessities such as food, shelter, and medical care to doctor visits – Family members attending medical appointments often provide an air of patient credibility that is compromised when one sees a physician alone. In addition, since many doctors’ offices are unsafe environments, family members can assist by communicating with the doctor when the individual with MCS is compromised. Advocacy – family members who are healthy and not compromised can be valuable resources for wading through the mounds of paperwork related to disability, financial affairs, and social services. Not to mention housing issues! Safe housing is the number one challenge for people with MCS. Family units provide the financial backing to enable renting or purchasing stand alone units which can be renovated to the needs of the MCS member. Single people can often face challenges when lacking the financial capability and support to afford these expensive modifications and often live in toxic community settings such as an apartment complex.
While there are many more obstacles those both single and with partners face when trying to cope while struggling with the effects of Multiple Chemical Sensitivities , it is so important to be able to reach out and find the help and support you need.
The Dynamic Neural Retraining System will not only help you overcome your condition but offers all the tools and support you need to navigate your journey to healing, including some guidance in the student manual that contains a template on how to approach and talk to your family and friends, and available coaches to reach out to when you need support!
For more information and testimonials – A Spouse’s Perspective
“You are not alone, your suffering has not been in vain, and you can live the life that you dreamed of, even if you stopped dreaming a long time ago.” Annie Hopper – Wired For Healing